So You’ve Just Been Diagnosed… Favourite Resources

Thanks to everyone who responded to yesterday’s post asking for your top 3 pieces of advice to people newly diagnosed with a mental disorder. I thought I would pick your brains again to find out your favourite resources related to your condition. It could be a source of info about symptoms or treatment options, or it could be an advocacy site, or a discussion forum, or a blog, or a site with great self-care resources – anything goes! And of course I’ll credit your blog for any resources you share.

I have a feeling WordPress’s spam filter is going to have a field day with comments that include links, so if your comment disappears, it’s probably been eaten by the spam filter, and I’ll fish it out shortly.

Thanks for your help!

57 thoughts on “So You’ve Just Been Diagnosed… Favourite Resources”

  1. The mental health blogs here on WordPress have been so helpful. In particular, Lucky Otters Haven. Her blog can still be accessed although it appears she stopped writing. Her blog is very good if you are a survivor of Narcissistic abuse.

  2. I like too many to list, but a few are, discussing dissociation, ritualabuse.net, ivory garden which is a did forum, my own did forum did discussions, its a group on groups.io, there is more info on my blogs homepage. Xx

  3. I’m rather internal when it comes to my disorders: I have no websites beyond WP that I follow for recovery. I mostly relied on books, especially when it came to my eating disorder. Geneen Roth was a big help, so was Portia de Rossi, Jennifer Schaefer, and Aimee Lee.

  4. Ooo good question. I like a few sites for mental health purposes, but I’m not sure they really fit what you’re looking for.

    Psychology Today – general interest, information, tips (like on mindfulness, for instance) – https://www.psychologytoday.com/

    Mindful – Living more mindfully, dealing with anxiety and stress – https://www.mindful.org/

    Mental Health Forum – I’ve not used it, but there’s a UK-based forum (think anyone can use though) for those with mental health issues just to chat, ask questions, get support – https://www.mentalhealthforum.net/forum/

    Caz xx

  5. I haven’t found a whole lot of resources about Borderline Personality Disorder. My go-to is therefore my therapist. She has loads of info and will answer any questions I have. A friend just tuned me into “Psychology Today” which someone else in your comments mentioned. I think that’s a great resource from all accounts. Recently one of my followers sort of flamed me for “being whiny and talking too much about mental illness”, which I blog about, and perhaps too often. That has kind of made me more hesitant to talk about it, and also pisses me off. I think it’s very important to discuss mental illness and am grateful for the resources YOU share!

  6. I didn’t realize I disassociate until an event happened that shows I disassociate. For resources, I find DBSA a great resource. They used to have local meetings, but I haven’t attended one in a while as they tend to let people talk way more than they should. They tried a time limit which failed as the moderators weren’t willing to enforce the time limit.

    I find the DBSA website to be very helpful. I also follow a few blogs that are mental health focused, including some that are bipolar focused.

  7. DBSA and NAMI are two national organizations that have helped me.
    There are some good mental health tik tokers like danielhale40 and schizophrenichippie. I am on tiktok schizophrenicdogmom posting mostly coping skills.
    Brian Barnett has a website thelastsymptom.com that is about emotional health including BPD

  8. Johnzelle Anderson

    1) I love reading memoirs about folx who have mental health conditions. Some of my favorites are linked below.

    https://panoramiccounseling.com/cicely-tyson-honoring-the-life-and-legacy-of-an-icon/

    https://panoramiccounseling.com/memoirs-of-mental-health-mariah-carey/

    https://panoramiccounseling.com/memoirs-of-mental-health-trevor-noah/

    https://panoramiccounseling.com/memoirs-of-mental-health-gabourey-sidibe/

    2) This answer might sound strange, but home workouts have been super helpful. You can find free workout videos at fitnessblender.com

    3)If you have physical illness that impacts your mental health, I鈥檇 highly recommend the podcast, MS Conversations with Candi. http://www.conversationswithcandi.com/

  9. Oh where to begin, PTSD with dissociation, severe mood disorder, major depressive disorder, chronic and anxiety disorder, suicidal tendencies (great band), long-term eating disorder…
    Honestly, your blog is the first MH blog that I have followed. It is legit safe and you are easy to share with, and that is awesome.
    A couple years ago I did my best to write about my PTSD and my 2 year process in EMDR therapy.
    It was life changing and life saving for me.
    Like everything in mental health, it doesn’t work for everyone, but I would not be here without it.

  10. CPTSD Foundation, Andrew Huberman, Dr. Nicole LePera, Nate Postlethwait, Mark Manson to mention just some people where I turned for the info online. I also like to seek information through courses at Coursera and Udemy. Last but not least, your blog Ashley, thanks for all your support.

  11. For what seems like my entire life, everything that the orginization To Write Love On Her Arms does and writs and promotes has been SO meaningful for me. And a lot of other people. I love their writings, and they have many useful tools on their website specifically geared towards helping people find help in their area.
    They also have scholarships for people who want but can’t afford therapy. I love them and everything they stand for so much, they’ve saved me many times. I wear their t-shirts almost every day! 馃槉
    https://twloha.com

  12. A site I would recommend is Libero Magazine. It’s a non-profit based in Canada that focused on peer support for those who struggle with mental illnesses. I am biased because I have written for this site before. I do also think it could be a useful site for folks.

    This is such an awesome project Ashley. You kick so much ass!

  13. Since anything goes…

    resource
    [藞r膿藢s么rs, r蓹藞s么rs]
    NOUN
    (resources)

    an action or strategy which may be adopted in adverse circumstances.
    “sometimes anger is the only resource left in a situation like this”
    synonyms:
    expedient 路 resort 路 means 路 measure 路 method 路 course 路 way 路 scheme 路 [more]
    dated
    a leisure occupation.
    synonyms:
    pastime 路 activity 路 leisure activity 路 hobby 路 pursuit 路 interest 路 entertainment 路 recreation 路 diversion 路 amusement 路 divertissement

    My top three resources:
    1. Being outdoors. Find an area that’s easy for you to access, maybe a park, trails, city streets. Even if you just sit in your car somewhere you enjoy being. Be mindful. What do you hear? What does it smell like when you breathe? Who and what do you see? Being present in a different- space than usual and intentionally experiencing it, gives your mind a rest.

    2. Anti-resource: Took me a long time to understand this but be prepard for friends and family to give LOTS of advice, well-meant, but just as you can’t imagine living with no symptoms of mental illness, they really cannot comprehend what’s going on for you; unless, they’ve also been ill. Shit, it’s hard enough for me to work through the detritus left in the wake of some pretty terrible seasons of my life. Friends and family? Hang out, share what you want, when you want, or don’t. If you feel awkward, have a couple comments at the ready, such as “Huh, that’s interesting.” Change subject. I sometimes say, “Yeah, I’m in the middle of trying a new approach now. Takes time.” Change subject. Use support groups and professionals for advice on handling your particular circumstances. My familiy and close group of friends have stayed with me for 27 yrs of this, so they’ve seen the struggle is real. And they still give of advice, bless their hearts.

    3. Give yourself the same grace you would give to a friend dealing with being ill, being sick. Take care of yourself or ask someone close to help run errands or whatever. Do not be ashamed that you have an illness. You didn’t pick it. It’s not because you did something wrong or weren’t strong enough to handle. Feed your soul. Breathe. You’re not alone.

      1. There’s one on Facebook called “Ocd & Anxiety Support.” I’ve also gotten a lot of help from the app – NOCD. It has some great breathing exercises, video support sessions, support groups, and videos from therapists explaining a lot of certain things about OCD and the therapy that’s best for people who have it (ERP, usually).

  14. Such a great project Ashley!

    For BPD/ attachment related conditions, I’m getting a lot from Reinventing Your Life by Jeffery Young. Also, DBT is so valuable. I had been using a DBT app- dbt000 (?)- pretty good as long as you’re familiar with how DBT works. Kati Morton has loads of content on YouTube covering so many areas of mental health, and presented in a way that’s easy to understand. I’ve also discovered Dr Diane Poole Heller, who I’m keen to listen to more. I’ve only listened/ watched on video of her, when she was a first on Being Well podcast hosted by Forrest Hanson, but just that one video made an impression on me.

      1. Perhaps. It has puzzle pieces in the icon? I just looked at mine again, definitely dbt000. But then I looked in Google Play and it says dbt112- and says I have that installed. Odd! But, it has the puzzle pieces in the icon.

        1. And to make it even weirder, Google Play has it listed as both dbt112 and dbt911, with the same developer name and reviews and everything else. The screenshots listed for both say dbt911, so it seems to be one app with three different names.

      2. Oh, I thought of another resource I really like Wellness Recovery Action Plan (WRAP) developed by Mary Ellen Copeland. Offers a great template for managing wellbeing, what to do in crisis and recovery. I remember taking a client to their psychiatrist appt and we all started talking about it. Psychiatrist saw benefit to it, but didn’t like the idea it has copywrite- potentially limiting access to it. I take his point, though in Australia the program which is run between 8-12 wks is often run for free to services users (and has been used in some public hospitals).

  15. Though it may be clinically labelled as some other disorder, I have a self-diagnosed condition involving ACE trauma, ASD and high sensitivity 鈥 which I freely refer to as a perfect storm of train wrecks. It鈥檚 one with which I greatly struggle(d) while unaware, until I was a half-century old, that its component dysfunctions had official names.

    I still cannot afford to have a formal diagnosis made on my condition, due to having to pay for a specialized shrink, in our (Canada’s) supposedly universal health-care system. Within that system, there are important health treatments that are universally inaccessible, except for those with a bunch of extra money. … If one has diagnosed and treated such a formidable condition when one is very young, he/she will likely be much better able to deal with it through life.

    Nonetheless, my experience has revealed to me that high-scoring adverse childhood experience trauma that essentially results from a highly sensitive introverted existence notably exacerbated by an accompanying autism spectrum disorder, can readily lead an adolescent to a substance-abuse/self-medicating disorder, including that involving eating. Though I鈥檝e not been personally affected by the addiction/overdose crisis, I have suffered enough unrelenting ACE-related hyper-anxiety to have known and enjoyed the euphoric release upon consuming alcohol and/or THC. The self-medicating method I utilized during most of my pre-teen years, however, was junk food.

    I also now know that my brain basically uncontrollably releases potentially damaging levels of inflammatory stress hormones and chemicals, even in non-stressful daily routines. It’s like a discomforting anticipation of 鈥榯he other shoe dropping鈥 and simultaneously being scared of how badly I will deal with the upsetting event, which usually never transpires. It is like a form of brain damage.

    1. Canada seems entirely useless at dealing with issues that weren’t picked up or addressed in childhood, whether that the autism spectrum, ADHD, fetal alcohol syndrome, ACEs, or what have you.

      1. One tries accessing one-on-one therapy in our 鈥渦niversal鈥 health care system:
        Within our 鈥渦niversal鈥 health-care system, there are important health treatments that are universally inaccessible, except for those with a lot of extra doe to blow.

        In Canada, somewhat similar to the U.S., people’s health comes second to maximizing profits, in particular those amassed by an increasingly greedy pharmaceutical industry. Resultantly, we continue to be the world鈥檚 sole nation that has universal healthcare but no similar coverage of prescribed medication, however necessary.

        A late-2019 Angus Reid study found that about 90 percent of Canadians 鈥 including three quarters of Conservative Party supporters specifically 鈥 support a national ‘pharmacare’ plan. Another 77 percent believed this should be a high-priority matter for the federal government. The study also found that, over the previous year, due to medication unaffordability, almost a quarter of Canadians decided against filling a prescription or having one renewed.

        Not only is medication less affordable, but other research has revealed that many low-income outpatients who cannot afford to fill their prescriptions end up back in the hospital system as a result, therefore costing far more for provincial and federal government health ministries than if the medication had been covered. Ergo, in order for the industry to continue raking in huge profits, Canadians and their health, as both individual consumers and a taxpaying collective, must lose out big time.
        ________

        P.S. I also wonder whether it’s just me, or is it a bit curious how the only two health professions鈥 appointments for which Canadians are fully covered by the public plan are the two readily pharmaceutical-prescribing psychiatry and general practitioner health professions? Such non-Big-Pharma-benefiting health specialists as counsellors, therapists and naturopaths, etcetera, are not covered a red cent. (I’ve never been much of a Coincidence Theorist).

        1. Interesting Angus Reid results.

          My guess with funding physicians as opposed to therapists under the Canada Health Act is short-sightedness re. funding. I wonder, if a national pharmacare plan ever came into existence and the federal government had to start coughing up money for medications, would therapists start looking a whole lot more like the good investment they actually are?

          1. Currently, the pharmaceutical industry profits from sedating and/or concealing ACE-trauma’s SYMPTOMS via tranquilizers and/or antidepressants.

  16. I don鈥檛 have specific resources to give, but I do have a few encouragements to keep in mind if you鈥檝e just been diagnosed.

    1. It proves your strength that you鈥檙e now in the process of getting help.

    2. Having a solid (correct) diagnosis is an essential step to recovery. You鈥檙e closer to finding the right medication, therapy, support system, etc. that can really change your life for the better.

    3. You鈥檙e not weak for being diagnosed with a MENTAL illness. It鈥檚 just as real and significant as any physical illness. There鈥檚 nothing to be ashamed of.

    4. Remember that you鈥檙e so much more than your new diagnosis. It鈥檚 not YOU, it鈥檚 something you鈥檙e struggling with.

    5. You鈥檙e not alone in your illness and you鈥檙e likely to meet others going through similar things. It can feel very liberating to talk about it with others who understand/relate.

    6. If you feel like your diagnosis is wrong, speak up and explain yourself鈥t鈥檚 always worth it!

    7. If you don鈥檛 feel comfortable with a new therapist/psychiatrist/psychologist, it鈥檚 your right to find the proper person/team.

    8. If you feel like your own symptoms don鈥檛 match what鈥檚 commonly listed for the disorder, remember that everyone is unique and that includes the expression of symptoms of mental illness. It鈥檚 NOT a one size fits all.

    Finally, good luck to you, we鈥檙e sending strength and courage. Keep up the good fight鈥ou can make it!

    Thank you Ashley for this project, it鈥檚 a great idea!

  17. During my very first psych hospitalization, I met a fellow patient with bipolar disorder. I guess he could tell I was in shock and not fully understanding my situation. So, he gave me the book “Surviving Manic Depression: A Manual on Bipolar Disorder for Patients, Families, and Providers by E. Fuller Torrey. It was extremely helpful for me and after over 15 years is still my favorite book on the disorder. The medication section is grossly outdated, as are some of the links provided to resources, but it has much much more that is still valid.

Leave a Reply

%d bloggers like this: