Insights into Psychology

What Is… Autistic Burnout

Definition of autistic burnout from researcher Dora Raymaker

In this series, I dig a little deeper into the meaning of psychology-related terms.  This week’s term is autistic burnout.

Autistic burnout is something I’d only heard of quite recently, and I was curious to learn more about it. It’s a concept that’s discussed a lot among autistic communities, but hasn’t been well researched. A paper by autism researcher Dora Raymaker and colleagues drew on the experiences shared by study participants to develop this definition:

Autistic burnout is a syndrome conceptualized as resulting from chronic life stress and a mismatch of expectations and abilities without adequate supports. It is characterized by pervasive, long-term (typically 3+ months) exhaustion, loss of function, and reduced tolerance to stimulus.

Raymaker et al., 2020

What autistic burnout looks like

Burnout occurs when expectations/demands outweigh the ability to meet them, with a depletion of physical, mental, emotional, or social resources. Key characteristics of autistic burnout are chronic exhaustion, loss of skills, and reduced tolerance to sensory stimulus. Skills related to executive functioning are most often lost, and this particular element is sometimes described as autistic regression. Skills may not be fully regained afterwards, and the likelihood of that being the case increases with age.

While there is some overlap with the lack of energy that can occur in depression, autistic burnout is believed to be a distinct concept. It’s also distinct from occupational burnout, which is characterized primarily by exhaustion and decreased self-efficacy.

Onset of burnout

Several factors can contribute to burnout, including life stressors like changes in routine, a cumulative load of demands, and sensory or emotional overload. Having to pass as neurotypical and suppress autistic traits is a major contributor. The ability to manage stress may be hindered by not getting support from others, difficulties establishing boundaries and saying no, and being unable to take sufficient rest time.

Warning signs that burnout may be coming on can include lack of motivation, problems with self-care, memory loss, loss of speech, being quicker than usual to have meltdowns or shutdowns, and decreased ability to pass as neurotypical.

As a result of autistic burnout, people with autism have reported compromises in their health, quality of life, and capacity for independent living. In some cases, burnout can trigger suicidality.

Recovery strategies

The National Autistic Society suggests energy accounting strategies (basically managing one’s spoons in spoon theory), building in time to rest and to go without masking, taking regular breaks at work, and addressing demands that arent’ manageable. Some of the suggestions from the Autistic Women & Nonbinary Network include stimming, a sensory diet, exercise, massage, solitude, and spending time on special interests. If you’re not familiar with stimming, this Youtube video from Becoming Autism shows happy, unmasked stimming.

The research gap

The concept of autistic burnout arose organically within the autistic community, and the clinical and research communities haven’t caught up yet. It’s essentially crickets if you search Google Scholar for journal articles on the subject. Dora Raymaker, who is autistic herself, is currently leading the charge in autistic burnout research. It was her research team that came up with the definition quoted above. If you want a more in-depth look at the findings of her research, this (albeit long and academic speak-y) Youtube video on autistic burnout features an interview with her.

Is autistic burnout something you were familiar with? I’m hoping some of my blogging friends who are on the spectrum can share their experiences in the comments.

Sources

The Psychology Corner: Insights into psychology and psychological tests

The Psychology Corner has an overview of terms covered in the What Is… series, along with s a collection of scientifically validated psychological tests.

Visit the MH@H Resource Pages hub to see other themed pages from Mental Health @ Home.

26 thoughts on “What Is… Autistic Burnout”

  1. 🙂 Thank you for bringing this to my attention. This is the first time that I have heard of the term, “Autistic Burnout.”

    Do enjoy the rest of your day, Ashley.

  2. Thank you so much for writing this, you explain it so well.

    I honestly think this is what has happened to me, I used to cope so much better than I am at present. I believe I had my first burnout 3 years ago, when I was trying to gain my qualifications and I have struggled to gain my abilities to cope with things since then.

    I seem to have lost the ability to hold it all in. To talk and coping socially became depleted more than it ever has.

  3. I think some of my depressive episodes were partially or completely autistic burnout. I also experience more minor, short-lived, fatigue from everyday activities such as masking and social interactions. This is not really recognised as autistic burnout, but I definitely feel it is real. I feel it is specifically autistic rather than everyday fatigue as it can come from a day with no work or physical exertion, but some (not necessarily many) social interactions, and can persist after sleep and physical recovery. As I say, this is not really recognised, but I would love to put a label on it, if only so I would be less inclined to call myself “lazy” as a result of it.

  4. Gee, that sounds awful stressful!! 😮 It has raised my compassion levels. What struck me is the need to keep acting “normal”, and that made me sad. That must be a major stressor. In my case I gave up on normal in elementary school or thereabouts, but for all I know I actually come across as normal (in person). (No freakin’ clue.) I think it would be a huge source of stress to worry about it all the time. I’m also sad that this isn’t being researched!

  5. I lost all my coping mechanisms when I started the menopause. It’s been 8 years now and the only way I can cope is to live as a solitary. The shortest conversation can leave me exhausted and anxious about what I may have said and how I came across to the other person. Some people I can cope with more than others. People who constantly use irony cause me the greatest anxiety. It’s not that I can’t get irony but the way it’s delivered.
    Thanks for discussing this Ashley xx

  6. Thank you for this! I got my late diagnosis at the age of 31 and now, 10 years later, I’ve learned something new. I do believe I’ve been down this road shortly after I got hit with a divorce and my whole world just fell apart.
    I’ve reblogged this on my own site as I found it very interesting, so I felt I should spread the wisdom. 😊

      1. Yes that would be terribly helpful. When you feel you’ve lost all connection to the world, to what you thought you had and knew… I think it’s devastating for people not on the spectrum, but these huge life changes turned into awfully big challenges and it was so hard to get the right help for it…

        1. I can imagine. It sounds like appropriate services and supports for autistic adults are next to impossible to access even at the best of times, much less when going through a massive stressor.

          1. Getting my late diagnosis ten years ago really helped me to understand myself better. But most help here is aimed at kids, unfortunately… Like you grow out of it when you reach adulthood… So many sites and services all aiming for helping kids. Which, of course, is good. But if you get a late diagnosis, you will still need that support to learn yourself better and know where and how you can ask for help with things you struggle with. I really struggle with finances. I barely get by. And if I want professional help with that, I need to pay a monthly fee… Which of course I cannot afford due to the situation I’m in. I think I’m doing rather well on other aspects, but the money struggles are really hard on me. I’m ashamed every time I need to ask for help when I cannot afford groceries. And it’s not like I spend way too much on gadgets or other unnecessary things…. 😕 Even though I would love to be able to afford them all 😇

            1. Same! But when you’re on disability income, it’s harder to get the best help as they mostly consist of external instances that don’t work for the health care providers, so if you want that help, you need to have money… I guess it’s a struggle I’m most countries to get good care. Especially mentally. Physical health care is a wee bit better here but again, with long waiting lists, unfortunately.

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