Stop the Stigma: Resources to Challenge Mental Illness Stigma

Mental illness: Stop the stigma - graphic of face and megaphone with the words "speak up"

Mental illness may be difficult to live with, but the associated stigma can sometimes be even more challenging. Creating change requires open conversations and replacing stereotypes with real human stories. To be most effective in creating change, it’s helpful to begin with a solid understanding of the social phenomenon of stigma. This page pulls together information about stigma and resources to help challenge it.

We all have the power to be stigma warriors. Your story matters, and your voice matters.

Book cover: A Brief History of Stigma by Ashley L. Peterson

For a more in-depth look at stigma, check out my latest book, A Brief History of Stigma. It explores the nature of stigma, the contexts in which it occurs, and how we can most effectively challenge it. The book page also has a stigma reduction toolkit with resources to help you challenge stigma.

You can find the book on Amazon and Google Play.

A Primer on Mental Illness Stigma

Stigma isn’t inherent in mental illness; rather, it comes from social beliefs about what’s considered “normal” and socially acceptable, and what kinds of identities are considered deviant. These deviant identities, like mental illness, are seen as encompassing the whole person.

Stigma involves:

  • Stereotypes: Stereotypes are ideas that represent groups of people. We learn these early in life. When it comes to mental illness, stereotyped beliefs are rigidly applied to all members of that social group, as though we’re one homogeneous entity. The stereotype that mentally ill people are violent is particularly pervasive and damaging, and it’s regularly reinforced in the news and entertainment media.
  • Prejudice: Prejudice refers to negative attitudes, including thoughts and emotions, that are based on stereotypes. For example, the violence stereotype may trigger fear and a desire to avoid being around someone who has a mental illness.
  • Discrimination: This refers to behaviours that result from prejudice that end up disadvantaging people with mental illness. An example of discrimination would be an employer choosing not to hire someone with a mental illness based on their prejudiced attitudes towards mental illness and the associated stereotypes.

Stigma occurs through a 4-step process:

  1. Distinguishing and labelling of human difference
  2. Linking those differences to stereotypes
  3. Separating “us” from “them,” making the person with mental illness Other
  4. Status loss and discrimination

Levels of Stigma

There are multiple levels on which stigma can occur:

  • public stigma: public views and discrimination around mental illness
  • structural stigma: entrenched in laws and policies in governments and other institutions, often involving arbitrary distinctions based solely on membership in the broad group of people with mental illness
  • self-stigma: results from internalizing public stigma
  • feared vs. experienced: even if prejudice and discrimination aren’t presently occurring, the expectation that they’re likely to occur and the hypervigilance that results are also very damaging

To stop the stigma, it’s important to address each of these levels.

Corrigan and Rao's model for the process of how self-stigma happens

The Self-Stigma Process

Sometimes, stigma is internalized to become self-stigma (you can learn more in this post on self-stigma).

This happens when stereotypes that are part of public stigma are seen as being valid. These stereotypes are then applied to the self. This has significant consequences, including devaluation of the self and behavioural changes related to a “why try” attitude.

Peer support can be a powerful way of combatting self-stigma. You can read more here about the benefits of peer support.

Recommended Reading

These are my top three picks for books on mental illness stigma:


How do we fight stigma most effectively? Education? Contact? Language change? Protest?

Strategies to Stop the Stigma

Stigma reduction campaigns often use one of three broad approaches. These are explored further in this post on fighting stigma most effectively, which is based on Patrick Corrigan’s excellent book The Stigma Effect.

Protest

Protest strategies point out stereotypes and discrimination and call on people to address the injustices identified. However, they may end up triggering reactance, which is a psychological phenomenon that can happen when people perceive that their freedom is threatened. Reactance makes people dig in and lean harder into what they’re being told not to do in order to exert their freedom. This means that protest strategies can actually have the opposite of the intended effect.

Education

Education about mental illness can provide corrective information to counteract stereotypes.

Awareness campaigns also aim to increase public knowledge. These types of strategies can be done on a large scale and are relatively low-cost to implement. However, this approach assumes that lack of information is the cause of stigma, which isn’t necessarily the case.

Education campaigns that focus on framing mental illness as a biological brain disease have repeatedly been found to increase stigma, as strange as that may sound. You can read more about this in an article by Patrick Corrigan and Amy Watson in Schizophrenia Bulletin.

Contact

Contact with people who have a mental illness is the most effective way to decrease stigma. Specifically, it’s most effective when that contact involves:

  • equal social status
  • one-on-one contact
  • engaging together in a rewarding activity
  • interactions that moderately disconfirm stereotypes (but the person is still “convincing” as someone who has a mental illness)

Legislative & Policy Advocacy

Whether you like politics or not, what governments do can have a big impact on the lives of people with mental illness. That means we need to make sure that they hear our voices. Getting in touch with your local elected officials is one way to get active with political advocacy; you can also jump on board with the efforts of mental health organizations lobbying for positive changes.

This blog post on political advocacy can give you some ideas on how to get started.

These organizations have ongoing advocacy work that you may want to get involved with:


Resources for Advocates

WEGO Health’s Patient Leader Network has a variety of resources for health advocates, including networking opportunities and advocacy training. Here’s an invitation to join me there!

These sites also have information and tools to support you in your advocacy work:

The Advocacy 101 video below is from the AFSP (American Foundation for Suicide Prevention).

There’s no need to go it alone in challenging stigma. These are some of the organization that are trying to promote dialogue around mental illness and challenge stigma on a broader scale:


Raise Your Voice to Stop the Stigma

Stigma deals in stereotypes, but by sharing our stories, we can replace those stereotypes with a more realistic picture of what it is to be a person with a mental illness.

Coming out as having a mental illness, and sharing both the challenges and obstacles overcome, can be intimidating, but it’s a powerful way of demonstrating to the world what mental illness actually looks like without the stereotypes. The more of us that speak out, the easier it is for others to feel safe opening up and sharing their own stories.

Your story is your own to tell in whatever way you wish. However, when sharing your story specifically for the purpose of stigma reduction, there are certain strategies that can help you to be more effective with that. These resources have some useful tips:


Media

Speaking with the media is another option for getting the word out. Most of us don’t have much, if any, practice with that, but there are resources that can help you out. The University of Kansas Community Toolbox has tips on media advocacy, and the Berkeley Media Studies Group has resources for Getting Started with Media Advocacy.

In the UK, the charity Mind has media volunteer opportunities.

On Twitter, the hashtag #journorequest is a good way to connect with journalists looking for sources for stories. The US site HARO (Help A Reporter Out) also connects journalists with sources, and you can sign up for their email list.

In Australia, SANE’s Stigma Watch program monitors and responds to inappropriate media reporting on mental illness. You can let them know if you come across something concerning.


Speaking

Public speaking isn’t everyone’s cup of tea, but it can be a powerful way to share your story. Check with your local mental health charities to find out about speaking opportunities in your area.

These national charities offer speaking opportunities:


Ways to share your mental health story

Writing

Writing is a great way to share your story. If you’re feeling hesitant about sharing your story openly, sharing anonymously can be a good way to start.

The post Ways to Share Your Story contains links to mental health sites where you can submit stories.


Language and mental illness stigma

Language & Mental Illness Stigma

Words can hurt, but words stem from attitudes, and attitude change is what will lead to positive change for people living with illness. It’s important not to get so caught up in words that we lose sight of the bigger picture.


Language Policing

Language policing, or word policing, involves identifying certain words as being right or wrong, telling people which words to use, and then scolding people if they use the words that have been deemed to be wrong.

The problem with this is that telling people how to talk can trigger reactance, which can actually make them more likely to say what they’re being told not to say, especially if perceive it to be a matter of political correctness. While it may be possible to control language in certain specific circumstances and contexts, changing the attitudes that underlie word choices is more likely to produce lasting change across contexts.

Language policing is particularly problematic when it targets people talking about their own mental illnesses; that’s very much the wrong target audience. To challenge stigma, we need to address outsiders’ attitudes about mental illness, not create rules for people to speak about their personal illness experiences.

There’s more on this topic in this MH@H post on language policing and in Patrick Corrigan’s article Beware the Word Police in the journal Psychiatric Services.

The euphemism treadmill (first described in Steven Pinker’s New York Times article The Game of the Name) is a fascinating way of looking at the way the “correct” language for a concept because tainted and is then replaced by new “correct” language that means essentially the same thing. It’s not the word that’s the problem; it’s society’s negative attitudes toward what’s being named/described. As long as we’re continually having t come up with new and prettier words to talk about mental illness, it’s a sign that we’re missing the underlying attitudes that are driving the euphemism treadmill.


Person-First vs. Identity-First Language

The word police: examples of person-first and identity-first language about mental illness

Person-first language has become the “correct” way of talking about illness and disability. This involves using nouns (e.g. “I have a mental illness” or “I am a person with depression”) rather than adjectives (e.g. “I am mentally ill” or “I am depressed”). The idea is that identity-first language using adjectives implies that the person is nothing but the adjectives.

However, not everyone identifies themselves using person-first language.

Where I really see a weakness in person-first language is that we use identity-first adjectives to describe positive and neutral characteristics. I am intelligent, educated, brown-haired, female, Canadian, and mentally ill, but the only one of those I’m not supposed to say is the last one.

If someone assumes that being mentally ill defines me as a person, that’s not a matter of grammar, because you wouldn’t assume the same thing with “brown-haired.” It’s the nature of stigma that deviant identities are seen as all-consuming. If someone has a problem with me because I’m mentally ill, that has a lot more to do with the stereotypes in their minds rather than the fact that I say I am “mentally ill” instead of “person with a mental illness.” Changing the wording doesn’t address the underlying issue; it just sweeps it under the rug where it’s less visible, but still very much present.


Taking the Illness out of Mental Illness?

We all have mental health, ranging from poor to excellent, but only some of us have a mental illness. Yet, for some reason, some people use them synonymously.

Contrasting mental health and mental illness, comparing it to physical health and illness

No one seems to have trouble differentiating physical health from physical illness, so I don’t know why the wheels fall off when you sub in the word mental.

It seems to be an attempt to prettify mental illness. If we feel the need to talk around mental illness rather than about it, that’s a pretty good indicator that stigma is still a problem.

Mental Health ≠ Mental Illness


Mental Illness Stereotypes

Stereotypes are social knowledge structures that capture social knowledge and attitudes about members of a particular group. This becomes a problem when people rigidly apply stereotypes to all members of a group.

There may be a grain of truth in some cases, but mental illness stereotypes do not accurately represent the population of people with a mental illness as a whole.

Common stereotypes about people with mental illness are that we are:

  • Dangerous
  • Unpredictable
  • Untrustworthy
  • Unreliable
  • Lacking control/willpower
  • Weak character
  • Responsible for causing our own illness
  • Incompetent

Health care professionals may also have stereotypes about what a “good patient” should look like. These tend to relate to the incompetence stereotype, and the notion that patients shouldn’t have autonomy because they need others to make decisions for them.

While stigma and stereotypes reduce us down to only one thing, i.e. mentally ill, we are so much more than that. Being grounded in an awareness of your own many identities and social roles can help with deflecting stigma away from the whole self and framing it as something arising from society’s attitudes towards that one specific mentally ill identity.


The Violence Stereotype

One of the most common, enduring, and damaging stereotypes about mental illness is that mentally ill people are chronically dangerous and violence-prone. This stereotype, which the media regularly reinforces, evokes fear, leading to discriminatory behaviours. No matter how attached to it people are, though, the stereotype is not accurate.

The following posts address this:


Sanitizing vs. Stereotyping

In an attempt to counteract stereotypes, sometimes people will sanitize mental illness, presenting it as something that doesn’t cause a huge disruption in most people’s lives, doesn’t cause suffering, and is always possible to recover from.

The problem is, a lot of people (like me) don’t experience a sanitized version of mental illness. Neither the stereotyped version nor the sanitized version represents all experiences of mental illness; there’s a whole lot of diversity in the middle.


Pathologizing Normalcy

Stereotypes tend to inflate the gap between mental illness and normal human experience, but it’s also a problem when people try to shrink that gap to the point that it’s nonexistent. Pathologizing normal human experience can take the form of the attitudes that everyone gets depressed/anxious or that people are a little OCD/ADHD/etc.

Just like having the sniffles is not the same as having pneumonia, conflating normal human experiences with mental illness minimizes the very real challenges that people face when they actually do have a mental illness.


Structural stigma: icons representing hospitals, police, laws, housing

Structural stigma can be found in the laws and policies of governments and institutions that limit the opportunities available to people who have a mental illness. These limitations are applied due to membership in a broad group (e.g. everyone with mental illness) rather than factors specific to the individual.

Health Care

If knowing better was enough to stop stigma, then it wouldn’t exist in health care. Unfortunately, that’s not the case, and health professionals can be a significant source of stigma. Stereotyping, prejudice, and discrimination in health care can occur on a structural level as well as on the level of individual professionals.

This affects both the mental and physical health care that people with mental illness receive. “Diagnostic overshadowing” is a term that refers to health care providers getting so distracted by a mental illness diagnosis that they fail to recognize physical health issues (sometimes very serious ones) that a patient has.

These are some of blog posts on MH@H that address stigma in health care:

An Example of the Power of Advocacy

Serenity Integrated Mentoring was a program adopted by almost half of NHS Trusts in England. It involved pairing high emergency service users (mostly people with borderline PD and a history of sexual abuse) with a police “mentor.” Under SIM, patients could be refused emergency services, including at an A&E (ER) after a suicide attempt.

A grassroots coalition of mental health service users and allies called StopSIM forced the NHS to stand up and take notice, in a remarkable example of the impact people with mental illness can have when they come together.

This post on StopSIM’s campaign addresses both the serious problems of SIM and the impact of StopSIM.

Anti-Stigma Training for Health Care Professionals

These resources offer anti-stigma training targeted at health professionals:

Recovery-Oriented Practice

Another way to address stigma among health care professionals might be a shift towards recovery-oriented practice, which is an approach to mental health care that emphasizes hope, choice, empowerment, and self-determination, and frames recovery as an individual journey rather than the absence of symptoms (i.e. remission).

This is very different from the incompetence stereotypes and pessimism for recovery that are often involved in health professionals’ stigmatized attitudes. However, lip service to recovery-oriented practice while holding onto stigmatized beliefs isn’t good enough.

These sites have information on implementing recovery-oriented practice:

Funding Mental Health Care

One way that structural stigma shows up is in the underfunding of mental health care. Mental health care and research have not kept up with the resources allocated to physical health. However, investing in mental health actually makes good financial sense. In particular, adequately funding community mental health care is a good thing for people with mental illness, but it also reduces the need for acute care, which is far more expensive.

These resources address parity issues in health insurance coverage in the United States:

  • Parity Track (US): works to ensure access to behavioural health treatment
  • The Kennedy Forum: Parity Registry and Don’t Deny Me campaign supporting parity in mental health and physical health insurance coverage in the US

These organizations have laid out economic cases for investment in mental health care:


Other Contexts for Structural Stigma

Law Enforcement

Why have police become the de facto emergency mental health service? Mental illness is not a crime, yet far too many people have police, and even handcuffs, involved when they’re in crisis and require mental health care. This is traumatizing for mentally ill people, plus it’s likely to be stigma-reinforcing for members of the public witnessing this.

Perhaps defunding the police is part of the answer, including shifting responsibility for non-violent mental health crisis response over to the health care system. Having armed police showing up unannounced to do wellness checks” is not a therapeutic intervention.

The Mental Health Commission of Canada published a study in 2011 that sheds light on the nature of mentally ill people’s interactions with police.

Crisis Intervention Teams are one type of police intervention to try to deal more effectively with people with mental illness. However, a study published in Criminal Justice Policy Review found that CIT training did not make a difference in levels of mental illness stigma.


Correctional System

People with mental illness are over-represented in jails and prisons. This phenomenon has developed since deinstitutionalization beginning in the 1960s dumped large numbers of people out of psychiatric hospitals without adequate community supports. This has been referred to as transinstitutionalization.

The term “criminalization of mental illness” has also been used to describe people with serious mental illness getting caught up in the criminal justice system for minor nuisance offenses that could better be addressed by mental health treatment and better social supports, including housing.

These sites have more information on this issue:


Employment

People who have a mental illness have higher than average levels of unemployment, and they can face significant challenges in the workplace.

These blog posts look at some of those challenges:

The stigma reduction toolkit that accompanies A Brief History of Stigma has a module on workplace issues, which includes information on accommodations for mental illness-related disabilities. The Mental Health Resource Directory also has links to workplace mental health resources.

Various organizations have put together business cases for investing in workplace mental health, including:


Social stigma: Outline of a woman's head with the words "we judge because we don't understand"

Social Stigma

The COVID pandemic has put mental health on more people’s radar, but will that bring about a change in stigma once restrictions are over? Unfortunately, I’m inclined to think that it’s not going to have much of an effect when it comes to more serious forms of mental illness.

One way that stigma manifests is as a desire for social distance. In some rather surprising statistics from 2008, 55% of Canadians said they would be unlikely to marry someone with a mental illness, 46% saw mental illness as an excuse for bad behaviour, and 27% would be afraid to be around someone who was mentally ill. Those numbers seem incredibly high for not all that long ago.

NIMBYism (Not In My BackYard) is another manifestation of the desire for social distance. This can be a major barrier to creating more supportive housing. Stigma can also make landlords reluctant to rent to potential tenants who have a mental illness.

The narcissistic personality disorder and the narcissistic abuse phenomenon that’s all over the internet makes an interesting example of stigma being not only condoned but encouraged. Emotional abuse is clearly a bad thing; however, the way that abuse is framed as inherent in a certain mental illness and the amount of armchair diagnosing going on seems like an awfully slippery slope.


Perceived Causes of Mental Illness

The ways that society treats mentally ill individuals may be influenced by societal views about the causes of mental illness. Sometimes, mental illness is attributed to moral weakness on the part of the mentally ill individual. “Moral contagion” refers to concerns that this weakness might spread to others.

Mental illness may also be attributed to flaws in families and parenting. In the mid-1950s, the notion of the “schizophrenogenic mother” was popular. Within collectivist cultures, mental illness is more likely to be viewed as reflecting negatively on the family.

In some cultures, mental illness is believed to come from God or demons/evil spirits. Attempts to manage the illness are religious rather than medical in nature. People may be chained to trees for years at a time. The World Health Organization has made some progress addressing this, but there’s still a long way to go.


Mass Media

The news and entertainment media can play a major role in perpetuating stereotypes, especially the mentally ill = violent stereotype.

The news media often frames stories related to mental illness in a stigmatizing way. Several organizations have put together media reporting guidelines to support responsible reporting related to mental illness, including:

Films also play a role in perpetuating stigma related to mental illness and different forms of treatment. Documentaries like A Prescription for Murder, Letters from Generation Rx, and Take Your Pills promote negative attitudes about psychiatric medications. Electroconvulsive therapy is another treatment that’s associated with significant stigma, and public attitudes tend to be heavily influenced by One Flew Over the Cuckoo’s Nest.


TED Talks on Mental Illness Stigma

In this talk, Sangu Delle addresses the stigma faced by African men experiencing mental health problems. He shares the results of a Nigerian study, in which 34% thought mental illness was due to drug use, 19% thought divine wrath was the cause, and 12% blamed witchcraft.

This powerful talk by Max Silverman speaks to the ways in which mental illness is treated differently than mental illness.

In this passionate, high-energy talk, Ruby Wax uses humour to address common stereotypes and misconceptions about mental illness.

Together we have the power to stop the stigma!

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